{"id":755657,"date":"2018-11-27T15:57:23","date_gmt":"2018-11-27T21:57:23","guid":{"rendered":"https:\/\/www.ktbb.com\/post\/?p=755657"},"modified":"2018-11-28T16:10:14","modified_gmt":"2018-11-28T22:10:14","slug":"the-2019-miracle-child-named","status":"publish","type":"post","link":"https:\/\/ktbb.com\/post\/?p=755657","title":{"rendered":"The 2019 Miracle Child Named"},"content":{"rendered":"<p><a href=\"https:\/\/www.ktbb.com\/post\/wp-content\/media\/2018\/11\/Blake-Barney.jpeg\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.ktbb.com\/post\/wp-content\/media\/2018\/11\/Blake-Barney-150x150.jpeg\" alt=\"\" width=\"150\" height=\"150\" class=\"alignleft size-thumbnail wp-image-755658\" \/><\/a>TYLER &#8211; The 2019 Miracle Child representing the Children\u00e2\u20ac\u2122s Miracle Network Hospitals has been introduced in Tyler. She is Blake Barney, who is 16 months old. She and her parents and sister live in Tyler. Blake was born with a  neuro-developmental syndrome called EBF#-HADDS, which hasn\u00e2\u20ac\u2122t always been identified. It is a very rare and newly diagnosed syndrome, discovered in 2016. Currently there are only about one hundred known cases of EBF3-HADDS in the world, and Blake is one of the youngest children to ever be diagnosed with it. Blake will be lighting the City of Tyler\u00e2\u20ac\u2122s Christmas Tree on T.B. Butler Square at the conclusion of the Tyler Christmas Parade on Thursday evening.<!--more--><\/p>\n<p>The symptoms of EBF3-HADDS include low muscle tone, delayed development, impaired coordination, decreased mobility, weakness of the eye muscles, lack of smile and laugh, urological abnormalities, and speech delay. Although there isn\u00e2\u20ac\u2122t currently a cure for the gene mutation, Blake continues to impress her family and caregivers with her strong will. She attends specialized appointments and therapy sessions coordinated by the Special Needs Clinic, a medical home for medically fragile children made possible by Children\u00e2\u20ac\u2122s Miracle Network Hospitals. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>TYLER &#8211; The 2019 Miracle Child representing the Children\u00e2\u20ac\u2122s Miracle Network Hospitals has been introduced in Tyler. She is Blake Barney, who is 16 months old. She and her parents and sister live in Tyler. Blake was born with a neuro-developmental syndrome called EBF#-HADDS, which hasn\u00e2\u20ac\u2122t always been identified. It is a very rare and &hellip; <a href=\"https:\/\/ktbb.com\/post\/?p=755657\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">The 2019 Miracle Child Named<\/span><\/a><\/p>\n","protected":false},"author":12,"featured_media":755658,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"fifu_image_url":"","fifu_image_alt":"","footnotes":""},"categories":[177],"tags":[],"class_list":["post-755657","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-local-news-archive-archives"],"publishpress_future_action":{"enabled":false,"date":"2026-06-08 09:59:17","action":"change-status","newStatus":"trash","terms":[],"taxonomy":"category","extraData":[]},"publishpress_future_workflow_manual_trigger":{"enabledWorkflows":[]},"_links":{"self":[{"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/posts\/755657","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=755657"}],"version-history":[{"count":1,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/posts\/755657\/revisions"}],"predecessor-version":[{"id":755659,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/posts\/755657\/revisions\/755659"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=\/wp\/v2\/media\/755658"}],"wp:attachment":[{"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=755657"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=755657"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ktbb.com\/post\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=755657"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}